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"The Long Goodbye": Uncertainty Management in Alzheimer's Caregivers (open access)

"The Long Goodbye": Uncertainty Management in Alzheimer's Caregivers

Caregivers for individuals diagnosed with Alzheimer's disease (AD) shoulder a remarkably complex burden as compared to other caregivers of elderly individuals. For long distance caregivers, geographical separation further compounds the problems experienced by AD caregivers, as they are isolated from family members and support networks. Both on-site and long-distance AD caregivers experience uncertainty; the findings from this study illustrate how AD caregivers manage the uncertainty of the disease and primary care, as well as how uncertainty differs between on-site and long-distance caregivers. AD caregiver (N = 13) interviews were transcribed and qualitatively analyzed using uncertainty management theory as a thematic lens. The analysis revealed that AD caregivers experience overwhelming feelings of burden, guilt, and doubt; however, these feelings manifest differently depending on caregiver type. The findings of this study demonstrate that sources for obtaining information regarding AD and caregiving were useful for on-site caregivers; however, the sources did not account for the needs of long-distance caregivers or the psychosocial needs of on-site caregivers. Furthermore, AD caregivers did not seek support or information about AD and caregiving from health care professionals. Implications for future research regarding long-distance and on-site AD caregiving are discussed.
Date: May 2011
Creator: Shaunfield, Sara
System: The UNT Digital Library
Diversity Revealed: Photovoice Methodology as a Means for Understanding How Teens Construct Diversity (open access)

Diversity Revealed: Photovoice Methodology as a Means for Understanding How Teens Construct Diversity

Through the partnership of standpoint theory and photovoice method, the present study looked at how teenagers, attending a multicultural education camp, define diversity, as well as what the participants considered to be the benefits and limitations of diversity. Standpoint theory gives the theoretical perspective to understand the marginalized voice of teenagers, while photovoice provides the tools to better capture and understand their marginalized voice. This study was situated in a professionally-developed camp, Camp CommUNITY, that emphasizes multicultural awareness amongst teens. Nine participants and 46 pictures were analyzed. Resulting from open coding, 11 categories and 6 themes were identified. Each theme and definitions of diversity are approached with a dialectical perspective, yielding to the model of dialectical dimensions of diversity. To answer Research Question 2, participants identified both benefits and limitations for photovoice method. Additional theoretical, practical, and methodological implications, limitations, and directions for future research are addressed.
Date: May 2011
Creator: Rodriguez, Stuti Mehta
System: The UNT Digital Library
Re-Branding Palliative Care: Assessing Effects of a Name Change on Physician Communicative Processes During Referrals (open access)

Re-Branding Palliative Care: Assessing Effects of a Name Change on Physician Communicative Processes During Referrals

Although provision of palliative care on the United States is growing, referrals to the service are often late or non-existent. The simultaneous care model provides a blueprint for the most progressive form of palliative care, which is palliation and disease-oriented treatments delivered concurrently. Research indicates the existence of a widespread misconception that associates palliative care with imminent death, and some organizations have chosen to re-brand their palliative care services to influence this perception. The goal of this study was to assess the effects of a name change from palliative care to supportive care on the communicative process during referrals to the service.
Date: May 2011
Creator: Burt, Stephanie
System: The UNT Digital Library