According to the U.S. Department of Health and Human Services (HHS), patients and providers do not understand the Health Information Privacy and Accountability Act (HIPAA). Non-compliance with HIPAA is primarily due to confusion, along with insufficient understanding. HSS has taken measures to simplify the language they use to communicate HIPAA, however, they have not taken steps that consider if one's culture, religious and social perspectives, institutional training, credentials, and comprehension of legal terminology affects medical providers and non-clinical administrative personnel's abilities to understand HIPAA. This research uses bibliometrics to examine the literature from January 2010 – September 2020 that addresses HIPAA's use of legal terminology, literacy level, and institutional training, along with religious and social perspectives, and credentials of medical providers and non-clinical administrative personnel. A total of 107 articles were examined, 42 were assigned article influence scores with values that were less than 1.00, which is a below-average influence score for the article. There were 29 articles with values equal to or above 1.00, which translates to an equal or above-average influence score. The remaining 36 articles did not have article influence scores and were assigned values as not available. Results of the review of the literature indicate that …

When people access online health information, unfortunately, they have access to both clinically accurate and inaccurate information that they may then utilize to make informed personal health decisions. This research fills a gap in the literature of online health communities as they relate to chronic obstructive pulmonary disease (COPD). The conduct of this research required a multi-phased and multi-method approach, best presented in three distinct essays. In Essays 1 and 2, data gathering within two online health communities specific to COPD allowed this study to address three research questions: (1) what are the information needs of COPD patients that result in their participation in online health communities; (2) what are the information sources offered to the participants in these online communities; and (3) is the information obtained via those communities credible. Essay 1 harvested data from a moderated website hosted by a non-profit organization for patients with COPD and Essay 2 harvested data from a non-moderated Facebook group also serving this unique group. Data Miner, a Chrome extension designed to extract data, was used to collect data, key words and themes which brought an understanding of the health information needs of participants and identified what health information sources were preferred. …

The purpose of this study was to assess visual analytics technology acceptance and user experience among in vitro fertilization (IVF) consumers. The research aimed to show how visual analytics tools and technologies can be applied in the consumer space to enhance how users interpret healthcare success rate data. This exploratory user evaluation study utilized a quantitative dominant, mixed-methods approach with a convergent parallel design based on the data-validation variant. Survey data were collected from consumers who were currently seeking information about IVF treatment in the United States. The study findings indicated that the extended unified theory of acceptance and use of technology (UTAUT2) constructs of performance expectancy and hedonic motivation influenced consumer behavioral intention to use visual analytics technology, while effort expectancy did not. Further, the findings from the user experience and qualitative analyses indicated that there is strong support for consumer adoption of visual analytics technology for personal healthcare decision-making. These findings may help in the design and development of modern, interactive visualization tools that could be used to visualize public or private healthcare data for analysis by consumers. Stakeholders, including the US Centers for Disease Control and Prevention, the World Health Organization, and medical practitioners, may use the …

The purposes of this study are: a) to understand the treatments compliance behavior of the patient with chronic disease at the behavioral level, particularly, the relationship between treatments compliance behavior and normative beliefs; b) develop a behavioral model of patient's treatments compliance behavior that could be used for predicting, combating, treating, tracking and controlling the treatments compliance behavior of the patients with chronic disease. Seventy-two patients from senior daycare centers in the Dallas area, who suffer or had suffered from at least, one chronic disease, participated in the study. Data gathering was conducted using paper-based questionnaire. The most significant finding of this study is the relationship between normative beliefs and the treatments compliance behavior of the patient with chronic disease. Normative beliefs were found to have significant impact on the treatments compliance intent and behavior of the patients with chronic disease. Another important finding showed that side-effects of prescribed treatments have little or no influence on the treatments compliance behavior of the patient with chronic disease. A relationship between the effectiveness of medicine, particularly, predictive medicine, and treatments compliance behavior was established. The design of the study was intended to provide coverages for a set of constructs that may be …

In this study we explore the factors impacting physician patient interaction time and how these factors can be used to improve health knowledge transfer from physicians to patients. We also investigate how technology tools can be used to improve this interaction time. Physician patient interaction time is important because this is the time when both sides engage with each other, exchange information so that physicians understand their patients' health issues. Given the increasing health care costs and demand for physician time, over the years, this interaction time has been distracted due to many factors. It is important to explore these factors and provide some possible solutions, such as advanced knowledge management systems, such as knowledge portals. To identify the factors impacting this interaction time and the role of technology, we first identified the variables and then developed hypotheses. We used data from the surveys administered by the AHRQ and NCHS to test these hypotheses. We conducted correlation analyses to determine the factors that can be used to improve health knowledge transfer from physicians to patients and how technology tools can be used to improve physician patient interaction time. Our analyses indicate that the factors we identified to improve health knowledge …

The U.S. National Library of Medicine brought the intensifying interest in open science to national attention when it joined enthusiastic scientists to introduce and host an Amazon-like rating forum on PubMed—the world's largest database of indexed biomedical and life sciences literature. The result was PubMed Commons. In June 2013, the commenting forum was introduced for open discussion about published scientific literature as part of a three-pronged approach to improve research rigor, reproducibility, and transparency. In Feb. 2018, the forum was unexpectedly discontinued. This retrospective explanatory case study research asked the question, "What happened on the way to the forum?" Answers came from a variety of resources using multiple methodologies for data collection and analysis. Historical data from PubMed Commons' 7,629 comments and 1,551 commenters; key informant interviews with PubMed Commons editors; and a systematized search for published articles, gray literature; and social media content about PubMed Commons were analyzed using computer-mediated discourse analysis and a social network analysis. Results from the quantitative content analysis described a forum with little participation, and the qualitative content analysis demonstrated that active forum members were focused primarily on providing links to other information resources and discussing aspects of post-publication peer review. The social network …